3.0.0 2618 2020-02-10T17:01:56Z 2020-02-10T17:01:56Z Senate S S 2008-02-08 110 sshr00 Health, Education, Labor, and Pensions Committee Senate Standing Referred to 2008-02-08T17:30:39Z Paul D. Wellstone Muscular Dystrophy Community Assistance, Research, and Education Amendments of 2008 110 5265 HR 2008-10-08 Became Public Law No: 110-361. Related bill CRS 2008-02-08 sshr00 Health, Education, Labor, and Pensions Committee Senate Read twice and referred to the Committee on Health, Education, Labor, and Pensions. IntroReferral 2008-02-08 Introduced in Senate IntroReferral 10000 9 Library of Congress K000367 Sen. Klobuchar, Amy [D-MN] Amy Klobuchar D MN N I000055 Sen. Isakson, Johnny [R-GA] Johnny Isakson R GA 2008-02-08 True B000944 Sen. Brown, Sherrod [D-OH] Sherrod Brown D OH 2008-02-08 True C001035 Sen. Collins, Susan M. [R-ME] Susan Collins R ME M. 2008-02-08 True C001057 Sen. Coleman, Norm [R-MN] Norm Coleman R MN 2008-02-08 True H000206 Sen. Harkin, Tom [D-IA] THOMAS HARKIN D IA RICHARD 2008-02-08 True W000437 Sen. Wicker, Roger F. [R-MS] Roger Wicker R MS F. 2008-02-11 False D000388 Sen. Dodd, Christopher J. [D-CT] CHRISTOPHER DODD D CT JOHN 2008-02-14 False C001041 Sen. Clinton, Hillary Rodham [D-NY] HILLARY CLINTON D NY R 2008-02-14 False M001111 Sen. Murray, Patty [D-WA] Patty Murray D WA 2008-02-25 False B000711 Sen. Boxer, Barbara [D-CA] BARBARA BOXER D CA 2008-02-25 False F000062 Sen. Feinstein, Dianne [D-CA] Dianne Feinstein D CA 2008-02-26 False L000123 Sen. Lautenberg, Frank R. [D-NJ] FRANK LAUTENBERG D NJ R. 2008-02-28 False S001078 Sen. Sununu, John E. [R-NH] John Sununu R NH E. 2008-02-28 False C000286 Sen. Chambliss, Saxby [R-GA] SAXBY CHAMBLISS R GA 2008-02-28 False M000639 Sen. Menendez, Robert [D-NJ] Robert Menendez D NJ 2008-03-11 False C000567 Sen. Cochran, Thad [R-MS] Thad Cochran R MS 2008-03-31 False S000033 Sen. Sanders, Bernard [I-VT] Bernard Sanders I VT 2008-04-01 False S000663 Sen. Snowe, Olympia J. [R-ME] Olympia Snowe R ME J. 2008-04-02 False S000770 Sen. Stabenow, Debbie [D-MI] Debbie Stabenow D MI 2008-05-01 False L000261 Sen. Levin, Carl [D-MI] CARL LEVIN D MI MILTON 2008-05-12 False L000304 Sen. Lieberman, Joseph I. [ID-CT] JOSEPH LIEBERMAN ID CT I. 2008-06-04 False C000127 Sen. Cantwell, Maria [D-WA] Maria Cantwell D WA 2008-06-23 False V000126 Sen. Voinovich, George V. [R-OH] GEORGE VOINOVICH R OH V. 2008-06-24 False J000177 Sen. Johnson, Tim [D-SD] TIM JOHNSON D SD 2008-07-14 False S000148 Sen. Schumer, Charles E. [D-NY] Charles Schumer D NY E. 2008-07-25 False T000250 Sen. Thune, John [R-SD] John Thune R SD R. 2008-07-31 False M000702 Sen. Mikulski, Barbara A. [D-MD] BARBARA MIKULSKI D MD ANN 2008-09-12 False H.R.5265 https://www.congress.gov/bill/110th-congress/house-bill/5265 Health Commemorations Communication in medicine Congress Congressional reporting requirements Congressional tributes Ex-Members of Congress Government Operations and Politics Government publicity Health education Health surveys Medical research Medical statistics Muscular diseases Names Research centers Science, Technology, Communications Senate Health 00 2008-02-08 Introduced in Senate 2008-04-08T15:18:49Z Paul D. Wellstone Muscular Dystrophy Community Assistance, Research, and Education Amendments of 2008 - Amends the Public Health Service Act to designate centers of excellence for research on various forms of muscular dystrophy as Paul D. Wellstone Muscular Dystrophy Cooperative Research Centers.

Requires the Muscular Dystrophy Interagency Coordinating Committee to give special consideration to enhancing the clinical research infrastructure required to test emerging therapies for the various forms of muscular dystrophy.

Requires the Secretary of Health and Human Services to ensure that any data on patients that is collected as part of the Muscular Dystrophy Surveillance, Tracking and Research Network (MD STARnet) is regularly updated to reflect changes in patient condition over time. Requires the Director of the Centers for Disease Control and Prevention (CDC) to: (1) report to the appropriate congressional committees on MD STARnet and data collection; and (2) make publicly available prospective health outcome data on the health and survival of people with muscular dystrophy.

Requires the Director of CDC, in carrying out a program to provide information and education on muscular dystrophy to health professionals and the general public, to: (1) partner with leaders in the muscular dystrophy patient community; and (2) widely disseminate the Duchenne-Becker muscular dystrophy care considerations.

Requires the Director of the Agency for Healthcare Research and Quality to: (1) evaluate the available scientific evidence to develop and issue an initial set of care considerations for Duchenne-Becker muscular dystrophy and provide ongoing review and updates where appropriate; and (2) replicate the same systematic review methodology used to develop such care considerations as a model for other muscular dystrophies.

]]> Paul D. Wellstone Muscular Dystrophy Community Assistance, Research, and Education Amendments Act of 2008 Short Titles as Introduced Paul D. Wellstone Muscular Dystrophy Community Assistance, Research, and Education Amendments Act of 2008 Display Title Paul D. Wellstone Muscular Dystrophy Community Assistance, Research, and Education Amendments Act of 2008 Official Title as Introduced A bill to amend the Public Health Service Act to provide for research with respect to various forms of muscular dystrophy, including Becker, congenital, distal, Duchenne, Emery-Dreifuss Facioscapulohumeral, limb-girdle, myotonic, and oculopharyngeal muscular dystrophies. Introduced in Senate 2008-02-08T05:00:00Z https://www.govinfo.gov/content/pkg/BILLS-110s2618is/xml/BILLS-110s2618is.xml 2008-02-08 Read twice and referred to the Committee on Health, Education, Labor, and Pensions. text/xml EN Pursuant to Title 17 Section 105 of the United States Code, this file is not subject to copyright protection and is in the public domain. Congressional Research Service, Library of Congress This file contains bill summaries and statuses for federal legislation. A bill summary describes the most significant provisions of a piece of legislation and details the effects the legislative text may have on current law and federal programs. Bill summaries are authored by the Congressional Research Service (CRS) of the Library of Congress. As stated in Public Law 91-510 (2 USC 166 (d)(6)), one of the duties of CRS is "to prepare summaries and digests of bills and resolutions of a public general nature introduced in the Senate or House of Representatives". For more information, refer to the User Guide that accompanies this file.