3.0.0 3334 2023-01-11T20:37:51Z 2023-01-11T20:37:51Z House H HR 2007-08-02 110 hsif00 Energy and Commerce Committee House Standing hsif14 Health Subcommittee Referred to 2007-08-02T18:13:06Z Referred to 2007-08-02T04:04:05Z SMA Treatment Acceleration Act 110 2042 S 2007-09-12 Read twice and referred to the Committee on Health, Education, Labor, and Pensions. Related bill CRS 2007-08-02 hsif14 Health Subcommittee 1 House committee actions Referred to the Subcommittee on Health. Committee 2007-08-02 Referred to the House Committee on Energy and Commerce. IntroReferral H11100 2 House floor actions hsif00 Energy and Commerce Committee 2007-08-02 Introduced in House IntroReferral Intro-H 9 Library of Congress 2007-08-02 Introduced in House IntroReferral 1000 9 Library of Congress K000113 Rep. Kennedy, Patrick J. [D-RI-1] PATRICK KENNEDY D RI J. 1 N C001046 Rep. Cantor, Eric [R-VA-7] ERIC CANTOR R VA 7 2007-08-02 True G000280 Rep. Goode, Virgil H., Jr. [R-VA-5] VIRGIL GOODE R VA H. 5 2007-08-03 False B001254 Rep. Boren, Dan [D-OK-2] Dan Boren D OK 2 2007-08-03 False E000215 Rep. Eshoo, Anna G. [D-CA-14] ANNA ESHOO D CA G. 14 2007-08-03 False W000784 Rep. Wynn, Albert Russell [D-MD-4] ALBERT WYNN D MD R. 4 2007-08-03 False M001146 Rep. Marshall, Jim [D-GA-8] Jim Marshall D GA 8 2007-08-03 False W000797 Rep. Wasserman Schultz, Debbie [D-FL-20] Debbie Wasserman Schultz D FL 20 2007-09-04 False C000754 Rep. Cooper, Jim [D-TN-5] JAMES COOPER D TN H. 5 2007-09-04 False R000435 Rep. Ros-Lehtinen, Ileana [R-FL-18] ILEANA ROS-LEHTINEN R FL 18 2007-09-04 False B001229 Rep. Baird, Brian [D-WA-3] BRIAN BAIRD D WA 3 2007-09-04 False W000672 Rep. Wolf, Frank R. [R-VA-10] FRANK WOLF R VA R. 10 2007-09-04 False G000309 Rep. Gordon, Bart [D-TN-6] BART GORDON D TN 6 2007-09-04 False D000605 Rep. Drake, Thelma D. [R-VA-2] Thelma Drake R VA D. 2 2007-09-04 False Y000031 Rep. Young, C. W. Bill [R-FL-10] C. W. Young R FL Bill 10 2007-09-10 False B000657 Rep. Boucher, Rick [D-VA-9] RICK BOUCHER D VA 9 2007-09-24 False T000462 Rep. Tiberi, Patrick J. [R-OH-12] PATRICK TIBERI R OH J. 12 2007-10-02 False P000258 Rep. Peterson, Collin C. [D-MN-7] COLLIN PETERSON D MN C. 7 2007-10-02 False S001144 Rep. Shays, Christopher [R-CT-4] CHRISTOPHER SHAYS R CT 4 2007-10-03 False M000472 Rep. McHugh, John M. [R-NY-23] JOHN MCHUGH R NY M. 23 2007-10-15 False K000220 Rep. Kingston, Jack [R-GA-1] JACK KINGSTON R GA 1 2007-10-16 False D000136 Rep. Davis, Tom [R-VA-11] THOMAS DAVIS R VA M. 11 2007-10-16 False C001066 Rep. Castor, Kathy [D-FL-11] Kathy Castor D FL 11 2007-10-17 False S001169 Rep. Sestak, Joe [D-PA-7] Joe Sestak D PA 7 2007-10-23 False W000796 Rep. Westmoreland, Lynn A. [R-GA-3] Lynn Westmoreland R GA A. 3 2007-10-25 False F000445 Rep. Forbes, J. Randy [R-VA-4] J. Forbes R VA Randy 4 2007-11-05 False P000555 Rep. Pryce, Deborah [R-OH-15] DEBORAH PRYCE R OH 15 2007-11-07 False K000364 Rep. Kuhl, John R. "Randy", Jr. [R-NY-29] John Kuhl R NY R. "Randy" 29 2007-12-12 False S000810 Rep. Stark, Fortney Pete [D-CA-13] PETE STARK D CA 13 2007-12-18 False M000933 Rep. Moran, James P. [D-VA-8] JAMES MORAN D VA P. 8 2007-12-18 False F000443 Rep. Ferguson, Mike [R-NJ-7] MIKE FERGUSON R NJ 7 2007-12-19 False L000559 Rep. Langevin, James R. [D-RI-2] JAMES LANGEVIN D RI R. 2 2008-01-16 False W000789 Rep. Wilson, Heather [R-NM-1] HEATHER WILSON R NM 1 2008-03-04 False K000360 Rep. Kirk, Mark Steven [R-IL-10] MARK KIRK R IL STEVEN 10 2008-04-09 False C001067 Rep. Clarke, Yvette D. [D-NY-11] Yvette Clarke D NY D. 11 2008-04-16 False T000326 Rep. Towns, Edolphus [D-NY-10] EDOLPHUS TOWNS D NY 10 2008-04-22 False R000573 Rep. Ross, Mike [D-AR-4] MIKE ROSS D AR 4 2008-04-24 False M000087 Rep. Maloney, Carolyn B. [D-NY-14] CAROLYN MALONEY D NY B. 14 2008-04-30 False M001137 Rep. Meeks, Gregory W. [D-NY-6] GREGORY MEEKS D NY W. 6 2008-04-30 False H000948 Rep. Hulshof, Kenny C. [R-MO-9] KENNY HULSHOF R MO C. 9 2008-04-30 False P000591 Rep. Price, Tom [R-GA-6] Tom Price R GA 6 2008-04-30 False H000762 Rep. Hooley, Darlene [D-OR-5] DARLENE HOOLEY D OR 5 2008-04-30 False B001230 Rep. Baldwin, Tammy [D-WI-2] Tammy Baldwin D WI 2 2008-05-01 False A000361 Rep. Alexander, Rodney [R-LA-5] Rodney Alexander R LA 5 2008-05-08 False D000327 Rep. Dicks, Norman D. [D-WA-6] NORMAN DICKS D WA 6 2008-05-08 False S000185 Rep. Scott, Robert C. "Bobby" [D-VA-3] Robert Scott D VA C. "Bobby" 3 2008-05-08 False W000798 Rep. Walberg, Timothy [R-MI-7] Timothy Walberg R MI 7 2008-05-08 False P000323 Rep. Pickering, Charles W. "Chip" [R-MS-3] CHARLES PICKERING R MS W. 3 2008-05-21 False M000133 Rep. Markey, Edward J. [D-MA-7] Edward Markey D MA J. 7 2008-06-03 False W000804 Rep. Wittman, Robert J. [R-VA-1] Robert Wittman R VA J. 1 2008-06-03 False L000397 Rep. Lofgren, Zoe [D-CA-16] ZOE LOFGREN D CA 16 2008-06-10 False G000289 Rep. Goodlatte, Bob [R-VA-6] ROBERT GOODLATTE R VA W. 6 2008-06-10 False S000822 Rep. Stearns, Cliff [R-FL-6] CLIFF STEARNS R FL 6 2008-06-17 False W000793 Rep. Wu, David [D-OR-1] DAVID WU D OR 1 2008-06-18 False M001150 Rep. Miller, Candice S. [R-MI-10] Candice Miller R MI S. 10 2008-06-18 False A000357 Rep. Allen, Thomas H. [D-ME-1] THOMAS ALLEN D ME H. 1 2008-06-18 False B000574 Rep. Blumenauer, Earl [D-OR-3] EARL BLUMENAUER D OR 3 2008-06-19 False M001159 Rep. McMorris Rodgers, Cathy [R-WA-5] Cathy McMorris Rodgers R WA 5 2008-06-23 False C001036 Rep. Capps, Lois [D-CA-23] LOIS CAPPS D CA 23 2008-06-25 False L000480 Rep. Lowey, Nita M. [D-NY-18] NITA LOWEY D NY M. 18 2008-06-25 False I000026 Rep. Inslee, Jay [D-WA-1] JAY INSLEE D WA 1 2008-07-08 False W000801 Rep. Wilson, Charles A. [D-OH-6] Charles Wilson D OH A. 6 2008-07-08 False J000288 Rep. Johnson, Henry C. "Hank," Jr. [D-GA-4] Henry Johnson D GA C. "Hank" 4 2008-07-08 False K000188 Rep. Kind, Ron [D-WI-3] RON KIND D WI 3 2008-07-10 False K000172 Rep. Kildee, Dale E. [D-MI-5] DALE KILDEE D MI E. 5 2008-07-16 False R000577 Rep. Ryan, Tim [D-OH-17] TIM RYAN D OH 17 2008-07-16 False B001251 Rep. Butterfield, G. K. [D-NC-1] G. K. Butterfield D NC 1 2008-07-17 False N000002 Rep. Nadler, Jerrold [D-NY-8] JERROLD NADLER D NY 8 2008-07-17 False H000067 Rep. Hall, Ralph M. [R-TX-4] RALPH HALL R TX M. 4 2008-07-23 False M000590 Rep. McNulty, Michael R. [D-NY-21] MICHAEL MCNULTY D NY R. 21 2008-07-23 False N000179 Rep. Napolitano, Grace F. [D-CA-38] GRACE NAPOLITANO D CA F. 38 2008-07-24 False R000486 Rep. Roybal-Allard, Lucille [D-CA-34] LUCILLE ROYBAL-ALLARD D CA 34 2008-07-29 False G000410 Rep. Green, Gene [D-TX-29] GENE GREEN D TX 29 2008-07-29 False C001065 Rep. Carney, Christopher P. [D-PA-10] Christopher Carney D PA P. 10 2008-07-31 False R000033 Rep. Ramstad, Jim [R-MN-3] JIM RAMSTAD R MN 3 2008-09-08 False P000149 Rep. Payne, Donald M. [D-NJ-10] DONALD PAYNE D NJ M. 10 2008-09-08 False M001157 Rep. McCaul, Michael T. [R-TX-10] Michael McCaul R TX T. 10 2008-09-09 False M001151 Rep. Murphy, Tim [R-PA-18] Tim Murphy R PA 18 2008-09-10 False W000738 Rep. Woolsey, Lynn C. [D-CA-6] LYNN WOOLSEY D CA 6 2008-09-10 False M000485 Rep. McIntyre, Mike [D-NC-7] MIKE MCINTYRE D NC 7 2008-09-10 False P000523 Rep. Price, David E. [D-NC-4] DAVID PRICE D NC E. 4 2008-09-11 False B001242 Rep. Bishop, Timothy H. [D-NY-1] Timothy Bishop D NY H. 1 2008-09-15 False A000362 Rep. Altmire, Jason [D-PA-4] Jason Altmire D PA 4 2008-09-22 False H000676 Rep. Hoekstra, Peter [R-MI-2] PETER HOEKSTRA R MI 2 2008-09-22 False R000462 Rep. Rothman, Steven R. [D-NJ-9] STEVEN ROTHMAN D NJ R. 9 2008-11-19 False H001038 Rep. Higgins, Brian [D-NY-27] Brian Higgins D NY 27 2008-11-19 False Health Child health Clinical trials Congress Congressional reporting requirements Drug therapy Epidemiology Families Hereditary diseases Medical research Muscular diseases Orphan drugs Pharmaceutical research Science, Technology, Communications Health 00 2007-08-02 Introduced in House 2007-11-02T18:30:22Z SMA Treatment Acceleration Act - Requires the Director of the National Institutes of Health (NIH) to upgrade and unify existing spinal muscular atrophy (SMA) clinical trial sites to establish a national clinical trials network for SMA. Requires the Director of NIH to ensure that such network: (1) conducts coordinated, multisite, clinical trials of pharmacological approaches to the treatment of SMA; and (2) rapidly and effectively disseminates scientific findings to the field.

Requires the Director of NIH to: (1) establish an SMA data coordinating center; and (2) expand and intensify NIH programs with respect to preclinical translation research and medicinal chemistry related to SMA.

Requires the Secretary of Health and Human Services, acting through the Director of the Centers for Disease Control and Prevention (CDC), to enhance and provide ongoing support to the existing SMA patient registry to provide for expanded research on the epidemiology of SMA. Directs the Secretary to ensure the collection and analysis of longitudinal data related to individuals of all ages with SMA.

Requires the Secretary to establish the Spinal Muscular Atrophy Coordinating Committee to: (1) coordinate activities across NIH and with other federal health programs and activities relating to SMA; and (2) conduct a study to identify barriers to the development of drugs for treating SMA and similar genetic disorders.

Requires the Director of NIH to establish a trans-National Institutes of Health cooperative research initiative on SMA to ensure the success of the SMA projects led by the National Institute of Neurological Disorders and Stroke.

Requires the Secretary to submit recommendations to Congress to improve and expand on incentives provided under the Orphan Drug Act and related statutes to promote SMA drug development.

]]> SMA Treatment Acceleration Act Official Title as Introduced To authorize the Secretary of Health and Human Services to conduct activities to rapidly advance treatments for spinal muscular atrophy, neuromuscular disease, and other pediatric diseases, and for other purposes. Introduced in House IH Display Title SMA Treatment Acceleration Act Short Titles as Introduced SMA Treatment Acceleration Act Introduced in House 2007-08-02T04:00:00Z https://www.govinfo.gov/content/pkg/BILLS-110hr3334ih/xml/BILLS-110hr3334ih.xml 2007-08-02 Referred to the Subcommittee on Health. text/xml EN Pursuant to Title 17 Section 105 of the United States Code, this file is not subject to copyright protection and is in the public domain. Congressional Research Service, Library of Congress This file contains bill summaries and statuses for federal legislation. A bill summary describes the most significant provisions of a piece of legislation and details the effects the legislative text may have on current law and federal programs. Bill summaries are authored by the Congressional Research Service (CRS) of the Library of Congress. As stated in Public Law 91-510 (2 USC 166 (d)(6)), one of the duties of CRS is "to prepare summaries and digests of bills and resolutions of a public general nature introduced in the Senate or House of Representatives". For more information, refer to the User Guide that accompanies this file.