3.0.0 609 2020-02-10T17:00:17Z 2020-02-10T17:00:17Z Senate S S 2005-03-11 109 sshr00 Health, Education, Labor, and Pensions Committee Senate Standing Referred to 2005-03-11T17:14:19Z Prenatally Diagnosed Condition Awareness Act 109 1353 HR 2005-03-22 Referred to the Subcommittee on Health. Identical bill CRS 2005-03-17 Sponsor introductory remarks on measure. (CR S2982-2983) IntroReferral B00100 9 Library of Congress 2005-03-11 sshr00 Health, Education, Labor, and Pensions Committee Senate Read twice and referred to the Committee on Health, Education, Labor, and Pensions. IntroReferral 2005-03-11 Introduced in Senate IntroReferral 10000 9 Library of Congress B000953 Sen. Brownback, Sam [R-KS] SAM BROWNBACK R KS N K000105 Sen. Kennedy, Edward M. [D-MA] EDWARD KENNEDY D MA MOORE 2005-03-11 True I000024 Sen. Inhofe, James M. [R-OK] Jim Inhofe R OK 2005-04-05 False D000294 Sen. DeWine, Mike [R-OH] MICHAEL DEWINE R OH 2005-04-25 False Health Adoption Birth defects Child development Civil Rights and Liberties, Minority Issues Communication in medicine Communication in science Congress Congressional investigations Congressional reporting requirements Data banks Directories Down's syndrome Economics and Public Finance Electronic government information Epidemiology Families Family services Fetus Genetic counseling Government Operations and Politics Government paperwork Government publicity Grants-in-aid Health counseling Health education Health information systems Health surveys Hereditary diseases Imaging systems in medicine Internet Life expectancy Maternal health services Medical records Medical statistics Medical tests Patients' rights Quality of life Right of privacy Science, Technology, Communications Telephone Vital statistics Web sites Health 00 2005-03-11 Introduced in Senate 2005-04-25T20:26:02Z Prenatally Diagnosed Condition Awareness Act - Amends the Public Health Service Act to require the Secretary of Health and Human Services, acting through either the Director of the National Institutes of Health (NIH), the Director of the Centers for Disease Control and Prevention (CDC), or the Administrator of the Health Resources and Services Administration (HRSA), to authorize and oversee certain activities relating to Down syndrome or other prenatally diagnosed conditions, including the awarding of grants, contracts or cooperative agreements to: (1) collect, synthesize, and disseminate current scientific information; and (2) coordinate the provision of, and access to, supportive services for patients affected, which shall include a telephone hotline, an information clearinghouse, peer-support programs, and registries of families willing to adopt children affected by such conditions.

Requires the Secretary, acting through the Director of CDC, to provide assistance to State and local heath departments to integrate the results of prenatal testing into State-based vital statistics and birth defects surveillance programs.

Requires a health care provider to provide certain information to a patient who receives a positive test result from a prenatal test for such a condition, including: (1) up-to-date scientific information concerning the life expectancy, clinical course, and intellectual and functional development and treatment options for a fetus diagnosed with, or a child born with, such conditions; and (2) referrals to supportive service providers.

Requires the Government Accountability Office (GAO) to submit a report to Congress concerning the effectiveness of current health care and family support programs serving as resources for the families of children with disabilities.

]]> Prenatally Diagnosed Condition Awareness Act Short Titles as Introduced Prenatally Diagnosed Condition Awareness Act Display Title Prenatally Diagnosed Condition Awareness Act Official Title as Introduced A bill to amend the Public Health Service Act to increase the provision of scientifically sound information and support services to patients receiving a positive test diagnosis for Down syndrome or other prenatally diagnosed conditions. Introduced in Senate 2005-03-11T05:00:00Z https://www.govinfo.gov/content/pkg/BILLS-109s609is/xml/BILLS-109s609is.xml 2005-03-17 Sponsor introductory remarks on measure. (CR S2982-2983) text/xml EN Pursuant to Title 17 Section 105 of the United States Code, this file is not subject to copyright protection and is in the public domain. Congressional Research Service, Library of Congress This file contains bill summaries and statuses for federal legislation. A bill summary describes the most significant provisions of a piece of legislation and details the effects the legislative text may have on current law and federal programs. Bill summaries are authored by the Congressional Research Service (CRS) of the Library of Congress. As stated in Public Law 91-510 (2 USC 166 (d)(6)), one of the duties of CRS is "to prepare summaries and digests of bills and resolutions of a public general nature introduced in the Senate or House of Representatives". For more information, refer to the User Guide that accompanies this file.