ALS Registry Act

3.0.0 1353 2020-02-10T17:00:25Z 2020-02-10T17:00:25Z Senate S S 2005-06-30 109 sshr00 Health, Education, Labor, and Pensions Committee Senate Standing Referred to 2005-06-30T20:19:53Z ALS Registry Act 109 4033 HR 2005-10-17 Referred to the Subcommittee on Health. Identical bill CRS 2005-06-30 sshr00 Health, Education, Labor, and Pensions Committee Senate Read twice and referred to the Committee on Health, Education, Labor, and Pensions. (text of measure as introduced: CR 7/1/2005 S7836-7837) IntroReferral 2005-06-30 Sponsor introductory remarks on measure. (CR 7/1/2005 S7836) IntroReferral B00100 9 Library of Congress 2005-06-30 Introduced in Senate IntroReferral 10000 9 Library of Congress R000146 Sen. Reid, Harry [D-NV] HARRY REID D NV M. N W000154 Sen. Warner, John [R-VA] JOHN WARNER R VA WILLIAM 2005-06-30 True M001153 Sen. Murkowski, Lisa [R-AK] Lisa Murkowski R AK 2005-06-30 True C000567 Sen. Cochran, Thad [R-MS] Thad Cochran R MS 2005-06-30 True C001042 Sen. Corzine, Jon S. [D-NJ] JON CORZINE D NJ S. 2005-06-30 True S000770 Sen. Stabenow, Debbie [D-MI] Debbie Stabenow D MI 2005-06-30 True B000468 Sen. Bingaman, Jeff [D-NM] JESSE BINGAMAN D NM FRANCIS 2005-06-30 True D000563 Sen. Durbin, Richard J. [D-IL] Richard Durbin D IL J. 2005-06-30 True V000127 Sen. Vitter, David [R-LA] David Vitter R LA 2005-06-30 True S001142 Sen. Smith, Gordon H. [R-OR] GORDON SMITH R OR H. 2005-07-11 False L000550 Sen. Landrieu, Mary L. [D-LA] MARY LANDRIEU D LA 2005-07-14 False L000123 Sen. Lautenberg, Frank R. [D-NJ] FRANK LAUTENBERG D NJ R. 2005-07-18 False N000180 Sen. Nelson, Ben [D-NE] E. Nelson D NE Benjamin 2005-07-28 False B000711 Sen. Boxer, Barbara [D-CA] BARBARA BOXER D CA 2005-10-17 False B001233 Sen. Bayh, Evan [D-IN] EVAN BAYH D IN 2005-10-19 False N000032 Sen. Nelson, Bill [D-FL] CLARENCE NELSON D FL WILLIAM 2005-10-24 False D000596 Sen. Dayton, Mark [D-MN] MARK DAYTON D MN 2005-12-12 False D000388 Sen. Dodd, Christopher J. [D-CT] CHRISTOPHER DODD D CT JOHN 2006-01-25 False M001111 Sen. Murray, Patty [D-WA] Patty Murray D WA 2006-05-15 False C000858 Sen. Craig, Larry E. [R-ID] LARRY CRAIG R ID EDWIN 2006-05-17 False A000069 Sen. Akaka, Daniel K. [D-HI] DANIEL AKAKA D HI KOHIKINA 2006-05-17 False I000025 Sen. Inouye, Daniel K. [D-HI] DANIEL INOUYE D HI KEN 2006-05-18 False M000639 Sen. Menendez, Robert [D-NJ] Robert Menendez D NJ 2006-05-18 False M001162 Sen. Martinez, Mel [R-FL] Mel Martinez R FL 2006-05-22 False A000121 Sen. Allen, George [R-VA] GEORGE ALLEN R VA F. 2006-05-22 False B001135 Sen. Burr, Richard [R-NC] Richard Burr R NC Mauze 2006-05-22 False B001126 Sen. Burns, Conrad R. [R-MT] CONRAD BURNS R MT R. 2006-05-23 False C001057 Sen. Coleman, Norm [R-MN] Norm Coleman R MN 2006-05-23 False F000062 Sen. Feinstein, Dianne [D-CA] Dianne Feinstein D CA 2006-05-25 False D000294 Sen. DeWine, Mike [R-OH] MICHAEL DEWINE R OH 2006-05-25 False G000359 Sen. Graham, Lindsey [R-SC] Lindsey Graham R SC 2006-05-25 False D000432 Sen. Dorgan, Byron L. [D-ND] BYRON DORGAN D ND LESLIE 2006-06-07 False L000304 Sen. Lieberman, Joseph I. [D-CT] JOSEPH LIEBERMAN D CT I. 2006-06-07 False B001066 Sen. Bunning, Jim [R-KY] JIM BUNNING R KY 2006-06-07 False K000105 Sen. Kennedy, Edward M. [D-MA] EDWARD KENNEDY D MA MOORE 2006-06-08 False D000601 Sen. Dole, Elizabeth [R-NC] Elizabeth Dole R NC H. 2006-06-12 False S001141 Sen. Sessions, Jeff [R-AL] Jeff Sessions R AL 2006-06-15 False C000705 Sen. Conrad, Kent [D-ND] KENT CONRAD D ND 2006-06-16 False L000035 Sen. Lincoln, Blanche L. [D-AR] BLANCHE LINCOLN D AR LAMBERT 2006-06-23 False S000059 Sen. Santorum, Rick [R-PA] RICK SANTORUM R PA 2006-06-27 False C000174 Sen. Carper, Thomas R. [D-DE] Thomas Carper D DE R. 2006-06-28 False P000590 Sen. Pryor, Mark L. [D-AR] Mark Pryor D AR Lunsford 2006-06-29 False D000595 Sen. DeMint, Jim [R-SC] James DeMint R SC W. 2006-07-13 False C001041 Sen. Clinton, Hillary Rodham [D-NY] HILLARY CLINTON D NY R 2006-09-05 False S000148 Sen. Schumer, Charles E. [D-NY] Charles Schumer D NY E. 2006-09-05 False B000243 Sen. Baucus, Max [D-MT] MAX BAUCUS D MT SIEBEN 2006-09-05 False K000148 Sen. Kerry, John F. [D-MA] JOHN KERRY D MA FORBES 2006-09-26 False W000779 Sen. Wyden, Ron [D-OR] Ron Wyden D OR 2006-09-29 False T000024 Sen. Talent, Jim [R-MO] JIM TALENT R MO 2006-09-29 False L000261 Sen. Levin, Carl [D-MI] CARL LEVIN D MI MILTON 2006-11-13 False C001035 Sen. Collins, Susan M. [R-ME] Susan Collins R ME M. 2006-11-13 False Health Data banks Economics and Public Finance Epidemiology Federal advisory bodies Federal aid to health facilities Government Operations and Politics Health information systems Health surveys Medical statistics Nervous system diseases Science, Technology, Communications Health

00 2005-06-30 Introduced in Senate 2005-09-27T14:54:15Z ALS Registry Act - Amends the Public Health Service Act to require the Secretary of Health and Human Services, acting through the Director of the Centers for Disease Control and Prevention (CDC), to: (1) develop a system to collect data on amyotrophic lateral sclerosis (ALS); and (2) establish a national registry for the collection and storage of ALS data.

Requires the Secretary, acting through the Director, to establish the Advisory Committee on the National ALS Registry to study and make recommendations to the Secretary concerning: (1) the development and maintenance of the registry; (2) the type of information to be included; (3) the manner in which data is to be collected; (4) the use and availability of such data; and (5) the collection of information about diseases and disorders that primarily affect motor neurons that are considered essential to furthering the study and cure of ALS.

Allows the Secretary, acting through the Director, to award grants to, and enter into contracts and cooperative agreements with, public or private nonprofit entities for the collection, analysis, and reporting of data on ALS.

Requires the Secretary, acting through the Director, to: (1) identify, build upon, expand, and coordinate among existing data and surveillance systems, surveys, registries, and other federal public health and environmental infrastructure wherever possible; and (2) provide for public access to an electronic national database that accepts data from state registries, health care professionals, and others as recommended by the Advisory Committee in a manner that protects personal privacy.

Requires the Secretary to ensure that epidemiological and other types of information is made available to the National Institutes of Health (NIH) and the Department of Veterans Affairs.

]]>

ALS Registry Act Short Titles as Introduced ALS Registry Act Display Title ALS Registry Act Official Title as Introduced A bill to amend the Public Health Service Act to provide for the establishment of an Amyotrophic Lateral Sclerosis Registry. Introduced in Senate 2005-06-30T04:00:00Z https://www.govinfo.gov/content/pkg/BILLS-109s1353is/xml/BILLS-109s1353is.xml 2005-06-30 Read twice and referred to the Committee on Health, Education, Labor, and Pensions. (text of measure as introduced: CR 7/1/2005 S7836-7837) text/xml EN Pursuant to Title 17 Section 105 of the United States Code, this file is not subject to copyright protection and is in the public domain. Congressional Research Service, Library of Congress This file contains bill summaries and statuses for federal legislation. A bill summary describes the most significant provisions of a piece of legislation and details the effects the legislative text may have on current law and federal programs. Bill summaries are authored by the Congressional Research Service (CRS) of the Library of Congress. As stated in Public Law 91-510 (2 USC 166 (d)(6)), one of the duties of CRS is "to prepare summaries and digests of bills and resolutions of a public general nature introduced in the Senate or House of Representatives". For more information, refer to the User Guide that accompanies this file.