113 HR 2365 IH: Stillbirth Awareness and Research Act of 2013
U.S. House of Representatives
2013-06-13
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EN
Pursuant to Title 17 Section 105 of the United States Code, this file is not subject to copyright protection and is in the public domain.
1.This Act may be cited as the
Stillbirth Awareness and Research Act
of 2013
.
2.National
stillbirth registryPart B of
title III of the Public Health Service Act (42 U.S.C. 243 et seq.) is amended
by inserting after section 317T the following:
317U.National
stillbirth registry
(a)For the purposes described in subsection
(b), the Secretary, acting through the Director of the Centers for Disease
Control and Prevention, shall, by grant or contract, establish and maintain a
scientific registry of stillbirths in the United States (in this section
referred to as the registry).
(b)The
purposes of the registry are—
(1)to provide a
national repository for reporting and maintaining in a consistent manner data
on stillbirths; and
(2)to make such data
available for research on the causes and prevention of stillbirths.
(c)The registry shall include, with respect to
each stillbirth, information on the stillborn fetus and the mother’s health and
pregnancy as collected and submitted by States on the U.S. Standard Report of
Fetal Death. In submitting such information, the Director of the Centers for
Disease Control and Prevention shall require States to use the standard
definition of stillbirth and the standard protocol for stillbirth data
collection and surveillance as determined pursuant to subsection (d).
(d)Determination of
standard stillbirth definition and protocol
(1)For purposes of this
section, the Secretary shall provide for the development of the
following:
(A)A standard
definition of stillbirth.
(B)A standard
protocol for stillbirth data collection and surveillance.
(2)The
Secretary shall ensure that the standard definition and protocol described in
paragraph (1) are developed under such paragraph in a manner that ensures the
consultation of representatives of health care organizations, State and local
governments, and other interested entities specified by the
Secretary.
.
3.Sense of Congress
on NIH funding for stillbirth researchIt is the sense of the Congress that the
Director of the National Institutes of Health should increase the allocation of
funds and other resources for stillbirth research.
4.National public
awareness campaign
(a)The Secretary of
Health and Human Services shall carry out a national campaign to increase
public awareness and knowledge of stillbirths and public and State awareness of
the standard stillbirth definition and standard protocol for stillbirth data
collection and surveillance under section 317U of the Public Health Service
Act, as added by section 2.
(b)Measures To
reduce the incidence of stillbirthsActivities under the national campaign
under subsection (a) shall include—
(1)the dissemination of information on
measures for mothers to maintain a healthy pregnancy and assess fetal
health;
(2)the dissemination of information on good
prenatal care practices such as not drinking alcohol or smoking; and
(3)the promotion of the use of proactive steps
to monitor (or ascertain) a baby’s well-being, including the monitoring of
fetal movement beginning at approximately 28 weeks into the pregnancy.
5.Authorization of
appropriations
(a)To carry out this Act
and the amendment made by this Act, there is authorized to be appropriated
$5,000,000 for each of fiscal years 2014 through 2018.
(b)The aggregate
amount authorized to be appropriated by other provisions of law to the Centers
for Disease Control and Prevention for business services support is reduced by
$5,000,000 for each of fiscal years 2014 through 2018.